Bardet-Biedl-Syndrom · Center of Excellence
Our Team
Our interdisciplinary team at the Bardet-Biedl Syndrome Centre of Excellence is dedicated to providing comprehensive care for patients with this and related rare genetic disorders. Doctors from various disciplines work together with specialised nurses, therapists, scientists and coordinators to optimally integrate diagnostics, therapy and research. Through our close cooperation and exchange with international expert groups, we are able to provide long-term support and individual advice to those affected and their families, and to incorporate the latest scientific findings into our care.
Bardet-Biedl-Syndrom · Center of Excellence
organisational chart
Management
Dr. Metin Cetiner
Head of BBS CoE
Dr. Lars Dinkelbach
Deputy Head BBS CoE
Medicine
Dr. Tom Hühne
Medical Director
Josephine Holland
Doctor BBS CoE
Lisa Grote
Doctor BBS CoE
Dr. Pia Brensing
Doctor BBS CoE
Emma Steidel
Doctor BBS CoE
Dr. Ilja Finkelberg
Imaging
Coordination
Christiane Schäfer
Leading Study Nurse
Esra Ünal
Study Nurse
N. N.
Psychologist BBS CoE
N. N.
Data Scientist BBS CoE
Basic Research
Prof. Dr. Dagmar Wachten
Bonn, Germany
Prof. Dr. Elvira Mass
Bonn, Germany
Prof. Dr. Helen May-Simera
Mainz, Germany
Dr. Johannes Jägers
Essen, Germany
Contacts
Dr. Annie Matthew
Adult endocrinology
PD Dr. Anja Gäckler
Adult nephrology and immunology
Dr. Philipp Ranting
Ophthalmology
Dr. Mael Lever
Ophthalmology
Prof. Dr. Frank Kaiser
Genetics
Support
Leonie Gabriel
Support BBS CoE
Judith Sophia Huslage
Support BBS CoE
Asmaa Amaar
Support BBS CoE